We are officially entering Surveillance mode! We will continue to do scans every 3 months for the first year, then step down the frequency as long as the results are good. And if the same tumor comes back, we are heartened to know that it has already responded so well to chemo and that Lila was able to tolerate the treatment. Also they're developing new treatments all the time.
She will likely need to remain on antibiotics for 6-12 months while her system recovers. She can get a flu shot but must wait to receive her regular vaccinations. We are relying on herd immunity to protect her from diseases like measles, smallpox, and whooping cough. (Please vaccinate your children.)
I didn't realize that good news can put you into shock as much as bad news can. On Thursday, Sarah and I just felt exhausted ("like a limp noodle," she said). But we are beginning to accept this good news and actually feel good about it. I guess the recovery is as much a process as the treatment was.
Right now I'm happy that Lila can just be a kid for awhile. No more needles or tubes.
We're very grateful for your many calls, texts, prayers, letters, meals, and positive thoughts this year. There are so many people to thank. (Does this sound like an Oscars speech?) This is not something you can survive alone, and our extended community has really rallied around Lila and us. Someday we'll try to put better words around our feelings of gratitude.
For now ... JOIN OUR TEAM!
The Duncan Friends team is raising money for St. Jude in Memphis (where Lila's surgeon worked for years). The walk happens September 26 in Nashville. You don't have to actually walk it, but we're gonna have fun with it. For us, it's both a chance to give back and a celebration.
Would love to have you join us! Let us know if you have trouble signing up under our team and we'll add you manually.