Lila

Lila

Thursday, February 12, 2015

TryiNG Day

Today there was talk of going home again; however, when we met with the doctors this morning they said Lila's fluid intake goal was 28 ounces. Yesterday we tried really hard to push liquids and made it to 10 oz., so when I heard 28 was where we needed to be, I knew we were not going to make it. She needs extra fluid because of her kidney issues. And you can lead a toddler to juice, but you can't make her drink.
After lunch we decided that the NG tube was going to be necessary, as much as we didn't want it.
A particularly nasty battle to get her medicine down confirmed our decision, but that didn't make it any easier.
Actually getting the tube in was pretty traumatic. It took two attempts and three nurses. We had the music therapy lady in the room playing music during it all. Bless her heart. And poor Lila. Let's all pray that she leaves the tube alone because if we have to keep putting it back in...
Looking forward to going home tomorrow hopefully a restful night! Thank you all for your prayers and support!

11 comments:

  1. Took me a minute to notice the play on words with tryiNG... it's not like you're a former English teacher or anything! ;)

    Prayers continuous here at Lipscomb. Love you guys!

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  2. Poor sweet girl, definitely praying she gets used to it quickly!!

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  3. Thinking of you all. Will continue to pray...🌸

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  4. Oh I'm so sorry! Just makes me so sad to see her like that. Praying for you 4.

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  5. Oh my goodness that sounds like a hard day for everyone! Praying for a peaceful night and that the tube would not be in for long!! Lots of love!!

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  6. Oh my. I've been with adults fighting and pulling the NG out.

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  7. Hit publish too soon...
    For a toddler to accept it at all and leave it is miraculous! Praying and loving you all.

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  8. Oh - I can't imagine! Bless your hearts - I am praying for Lila and for you all!

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  9. We are checking for updates every day and praying for your whole family. Tate prays for Lila every night! I hope you get to go home and can get some rest. Love, Sean, Alicia & Tate

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  10. That picture breaks my heart. Glad she will be able to get what she needs into her body so she can be healthy, but I know that isn't the way anyone wanted it to happen.

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  11. My heart goes out to you and my prayers go up for you with each post. Thank you for the frequent updates. Praying that "the Father of compassion and the God of all comfort, will comfort you in your troubles, so that you may comfort Lila with the comfort you yourselves have received from God."

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